
The
following is a list of the most recommended books, articles and
teaching resources. To view an entire list of resources select the
link on the right title bar DATABASE OF RESOURCES
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Craft,
Ann (Ed.) (1994 reprinted 2001) Practice Issues in Sexuality
and Learning Disabilities, London, Routledge, Price:
Euro 32
"Practice Issues in Sexuality and Learning Disabilities
is designed as a practical guide for all those who
work in services for people with learning disabilities. It will
challenge service providers to re-evaluate the implicit and
explicit standards which operate in relation to sexuality and
sexual expression.
Ann Craft, the editor, has an international reputation for her
work on aspects of sexuality and learning disabilities, and
for this book she has brought together contributions from authors
in Britain, Canada and the USA. Drawing upon professional expertise
from a broad range of backgrounds - social work, education,
psychology, psychotherapy, medicine - the contributors tackle
the practical issues and dilemmas which confront all those who
work with people with learning disabilities. The contributions
range from a description of the development of a statutory agency's
policy document on sexuality to a carefully detailed case example
of sensitive work done with pregnant women with severe learning
disabilities; and from a chapter on HIV/ AIDS and safer sex
counselling to a discussion of the legal position in Britain
with regard to sexuality and learning disabilities. They also
discuss the problems of definition and response to `difficult'
sexual behaviour, and explore the issues raised by sexual abuse.
Down-to-earth and up-to-date in its approach, the book provides
practical ideas and suggestions which will be of immense value
and interest to all whose work brings them into contact with
people with learning disabilities - professionals, carers, parents
and advocates."
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Inglis,
Tom (1998) Lessons in Irish Sexuality, Dublin,
UCD Press, Price Euro 15
" The myth that sex does not exist in Ireland has been shattered.
Sex is no longer hidden behind closed doors. The Catholic Church's
monopoly over sexual morality has been broken. Sex has become
part of everyday social life. It is written and talked about
and regularly displayed in film and television. A new programme
of Relationships and Sexuality Education has been introduced
into Irish schools. The aim is to help young people learn about
themselves, their relationships and what it is to be sexual.
The programme has become a controversial issue. Is it an unnecessary
intrusion into the private life of the family, or is it too
little too late? Lessons in Irish Sexuality provides a clear,
easily read, analysis of the issues involved in teaching young
people about sexuality. It describes the deep divisions that
exist in the way Irish people see, understand and relate to
sex. At the heart of the problem is an older generation trying
to teach a younger generation about issues and problems which
they, as adults, are only coming to terms with themselves. "
Prof. Tom Inglis is a lecturer in sociology in University College
Dublin. He was previously Research Officer for the Irish Episcopal
Commission for Research and Development and, more recently,
Director of AONTAS, the National Association of Adult Education.
He is the author of Moral Monopoly: The Rise and Fall of the
Catholic Church in Modern Ireland and has written extensively
on various aspects of Irish culture.
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Kempton,
Winifred et.al (1993) Socialisation and Sexuality, A
Comprehensive Training Guide for Professionals Helping People
with Disabilities that Hinder Learning, Santa Barbara/USA,
James Stanfield Co. Inc.
(See also New Edition below)
Preface
"It was both a privilege and an honor to be invited to write
the preface for this book. All of us whose work on sexuality
brings us into contact with people with learning difficulties,
their parents, and direct care staff owe Winifred Kempton an
enormous debt of gratitude. Her pioneering teaching, writing,
and practical good sense have changed the way we think about
the personal relationships and sexuality needs of individuals
with learning difficulties. Winifred made us see the unintended
(and intended) consequences of treating people as asexual, eternal
children; of a lack of opportunities for positive, well-structured
sex education; of leaving children, adolescents, and adults
to learn about sexual feelings and behavior in the abnormal
settings of residential facilities and institutions. In the
early 1970's I worked in a mental handicap hospital which housed
nearly 300 adults. With changes in the philosophy of care, there
was an increasing number of discharges to community living situations.
Initially it had not occurred to anyone that the preparation
programs offered to people before they left the hospital should
include something on socio-sexual skills. However, a number
of ex-residents got into difficulties precisely in this sensitive
area - hospital living had been poor preparation `or learning
about appropriate and inappropriate sexual behavior. This raised
dilemmas for staff - whose job was it to do such teaching, and
what should be taught? Everyone had different opinions and attitudes.
When in 1975 in the London library of International Planned
Parenthood, I stumbled across Winifred's first edition of this
Guide, it was immediately apparent that here was someone who
had been there already. With admirable clarity the book set
out for me a number of my own half-articulated thoughts on the
sexuality of people with learning difficulties, in addition
to many relevant issues that had not crossed my mind. It was
very comforting to find that someone (albeit on a different
side of the Atlantic!) had already faced all the problems we
were confronting and had practical advice and strategies to
offer. In no small part, our efforts in setting up a sex education
and counseling program within the mental handicap hospital were
guided and illuminated by Winifred's work. That she and I eventually
met and became firm friends was an additional pleasure. This
Training Guide offers a wealth of material to both new and experienced
trainers who wish to address issues relating to the socio-sexual
needs of people with learning difficulties. But let no one convince
you that the wiser course is to ignore this fundamental part
of human nature. Work on sexuality is concerned with so much
more than physiology; it is about a sense of self, about value
and respect, about self-advocacy, about age appropriate rights
and responsibilities, about adulthood. In short, the work that
we do with people with learning difficulties under the heading
of "sexuality" encompasses the whole and complete person. As
a trainer and sex educator myself, I am very well aware that
in one sense you can only learn by doing - that is to say, there
comes a time when the preparation has to stop and the work has
to commence. However, there is nothing in the rules that says
you have to reinvent the wheel before you start, and here in
this book we are provided with tried and tested wheels. Information
about course and program design, content and assessment is given
in a clear and easy-to-assimilate fashion. Users are encouraged
in a sensitive and supportive way to tackle all those issues
and questions which give rise to parental and staff anxiety,
and which, if not openly and honestly addressed, can sabotage
well intentioned programs. An important theme of the book is
to encourage would-be and existing trainers and sex educators
to build or link into local, state-wide, and national networks,
so that information, teaching approaches, resources, and experience
can be shared. In supporting each other, we also support the
work that we do with people with learning difficulties, their
parents, and service providers. It is my hope and expectation
that this latest edition of Winifred Kempton's Training Guide
will inspire and support a whole new generation of trainers
and educators working in the field of sexuality and learning
difficulties." Ann Craft
University of Nottingham Medical School, Nottingham, England
"Winifred Kempton has combined careers as psychologist, therapist,
social worker, and educator. She holds a master's degree from
Bryn Mawr College, and has been certified by the Academy of
Certified Social Workers (ACSW) and the Association of Sex Educators,
Counselors and Therapists (ASSECT). Mrs. Kempton served in the
fields of mental health and mental retardation until joining
the staff of Planned Parenthood of Southeastern Pennsylvania
in the early 70's, where she gained expertise in the social-sexual
aspects of training and educating professionals, persons with
disabilities, and their parents. Subsequently she presented
training programs and lectured throughout North America, Europe,
Australia, and the Far East. Currently she is a part- time trainer
and consultant in private practice in Haverford PA Among Winifred's
many publications are: Sex Education for Persons with Disabilities
that Hinder Learning: A Teacher's Guide. (fourth ed.), Counseling
and Sex Education for Special Groups (2nd ed.) with Warren Johnson,
and Love Sex, and Birth Control for the Mentally Retarded Person
with Medora Bass and Sol Gordon. (5th ed.); also three slides
series, including Life Horizons with James Stanfield, and four
films."
New Edition:
Kempton, Winifred (1998) Socialisation and Sexuality, A Comprehensive
Training Guide for Professionals Helping People with Disabilities
that Hinder Learning, Program Development Associates, Syracruse,
NY, USA, Price $59.95
"This encyclopedia (Completely revised in 1998) of information
on socialization and sexuality is an invaluable resource for
special educators, teachers, psychologists, social workers,
and parents - all people who want to increase the social satisfaction
and sexual safety of individuals with disabilities that hinder
learning: 352 page spiral bound book with soft cover."
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McGee,
Hannah et al (2002) The SAVI Report, Sexual Abuse and
Violence in Ireland, A National Study of Irish Experiences,
Beliefs and Attitudes Concerning Sexual Violence, Dublin, The
Liffey Press in association with Dublin Rape Crisis Centre,
Price: Euro 25
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Power,
Patrick C. (1993) Sex and Marriage in Ancient Ireland,
Dublin, Mercier Press Price: Euro 7.60
Recommended
Articles (With particular relevance to the Irish situation)
- Brown, Hilary (1994)
'An Ordinary Sexual Life?' A Review of the Normalisation
Principle as it Applies to the Sexual Options of People with
Learning Disabilities, Disability & Society, Vol 9, No, 2
"This paper explains why the normalisation principle has had
so little effect on the sexual options open to people with learning
disabilities. It analyses discourses about services and about
sexuality and suggests that one implicit role of services is
the regulation of sexuality and the creation of sexual boundaries.
The paper questions whether there are homogenous sexual values,
and challenges the assumption that sexuality is 'natural' arguing
that this view is simplistic and hides the extent to which rules
about sexual behaviour are applied on the basis of social inequalities.
Thus, the paper explores assumptions and ideologies about sexuality,
normality and integration and reinstates all three concepts
to a problematical status. It questions the ways in which people
with learning disabilities are really free to be 'sexual' and
the penalties they face in breaking out of the roles which have
been prescribed for them."
NAPSAC (1997) Annotated Bibliography, Supplement two, The Sexual
Abuse of Adults and Children with Learning Disabilities, Nottingham
- Kelly, James in association
with SAVI team members (2002) The Sexual Abuse of People
with Learning Disabilities, in: McGee, Hannah et al
(2002) The SAVI Report, Sexual Abuse and Violence in Ireland,
A National Study of Irish Experiences, Beliefs and Attitudes
Concerning Sexual Violence, Dublin, The Liffey Press in association
with Dublin Rape Crisis Centre
" This overview considers the particular vulnerabilities of
this group both in terms of being targets for sexual violence
and subsequently in :terms of disclosure and verification of
that abuse. International evidence is considered and combined
with available information from Ireland. Considering the data
in the international literature and anecdotal reports, there
is no reason to believe the problem in Ireland to be less prevalent
than elsewhere. Contact with key Irish informants has facilitated
identification of practices being developed or promoted in the
Irish setting. The present Irish situation with regard to guidelines
for the protection of persons with learning disabilities and
the current related law is outlined. Legal and programmatic
challenges for the future are considered."
- Walsh, Anthony (2000)
IMPROVE and CARE, Responding to inappropriate Masturbation
in People with Severe Intellectual Disabilities, Sexuality and
Disability Vol. 18. No. 1
"Inappropriate masturbation frequently presents as a challenging
behaviour in people who have intellectual disabilities. Responding
to this behaviour requires an approach that considers the individual's
reasons for the behaviour, and meets their individual needs.
This paper describes a framework for responding to inappropriate
masturbation based on principles of respecting the person's
rights, dignity and individuality. The framework uses the acronyms
IMPROVE (investigate, Meet the need, Planned education, Redirection,
Optimism, Versatility, Evaluation) and CARE (Consistency. Accuracy,
Respect and Empowerment) to develop an approach to effectively
address this behaviour."
Selection of "Frontline" Articles
- Caffrey, Shay (1991)
The Ideal Victims, Frontline, Spring Edition
- Finlay, Frieda (1992)
Mother Ostrich, Frontline, Autumn Edition
-
Job, Gert (1996) Sex-Education
for People with Learning Difficulties - a Crash Course or a
Guided Journey from Childhood to Adulthood?, Frontline, Issue
27
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McCarthy, Anne (2004) RESPECT - Relationships:
Person-centred: Education: Consent: Training, Article about
the RESPECT Symposium, Killarney, 5th - 6th November 2003, Frontline
57, Spring 2004
-
McConkey, Roy (2000) Sexuality and Relationships
- The Need to Know, in: Frontline 41,
-
O'Grady, Kathy (2004) Training in Sexual Expression,
Article about the RESPECT Symposium, Killarney, 5th - 6th November
2003, Frontline 57, Spring 2004
-
Swan, Rita (1995) Sexuality - Who we are, Frontline,
Issue 24
Recommended
Teaching Resources for Staff and Parents/Carers
Please note:
Professional organisations and professionals from around the world
connected with sex education or involved in developing sex education
resources highlight the necessity and importance of training before
starting to run sex ed programmes or using sex ed resources. This
has to do with the explicit nature of these teaching aids and the
sensitivity of the topic.
Prices of items listed below were correct in September 2004 and
might have changed since.
More details regarding suppliers can be found in APPENDIX (B.)
Recommended Teaching
Resources for Staff Working with Young People with Learning Disabilities
in the area of Sex Education
- Craft, Ann and Members
of the Nottinghamshire SLD Sex Education Project (1991) Living
your Life, Teaching Pack, Wisbech, LDA (Out of print
for some time but recently revised edition published by Brook
Publications: Re-edited by: Bustard, Sarah (2003) Living your
Life, Brook Publications, PO Box 1239, Coventry, CV8 3ZB, UK,
Tel: 0044-24-7654 5557, Fax: 0044--24-7654 5558 (E-mail: brook@adc-uk.com)
www.brook.org.uk Price: £50 +pp
- Brook Publications:
"A sexuality and relationships education resource aimed at students
with special eduational needs and/or learning difficulties aged
13 and above. This 260 page, A4 spiral bound workbook with 68-page
photocopiable worksheets helps teachers design, deliver and
evaluate a programme of SRE*. Following extensive revision by
student and staff user groups, the new edition has an increased
focus on disability awareness with specific advice for teachers
of students with autistic spectrum disorders."
* in the Irish Republic "RSE"
- Dixon, H. & Craft, A.
(1992) Picture Yourself, Teaching Pack, Wisbech,
LDA, Was out of print for some time and is now available on
the internet: www.me-and-us.com (Price Approx. £50 + VAT + pp)
Hilary Dixon: "PICTURE YOURSELF has been designed to help students
explore different aspects of personal, social and sex education,
It consists of 4 sets of 48 line drawings and photographs. PICTURE
YOURSELF is a teaching resource specifically designed to be
used with people with learning disabilities.4 sets of 48 drawings
and photographs per set with teachers' notes. Supplied on CD
- print what you need as you want it."
- Johns, Rebecca et al,
(1997/2001) Let's do it, Creative activities
for sex education for young people with learning disabilities.
Over 80 drama based activities developed by Image in Action,
Bledlow Ridge, UK, Image in Action, Chinnor Road, Bledlow Ridge,
High Wycome, Bucks HP14 4 AJ, Tel/Fax 0044 1494 481632 £17 +
pp
"Let's Do It
- A directory of practical
activities, designed to be accessible to busy teachers in
the classroom
- Easy to use, with
a page at a glance instructions for each activity and cross
reference between sections
- 8 sections provide
a framework for covering a complete sex education programme
(Group Building, Feelings, Body Parts, Relationships, Gender,
Life Cycle, Public and Private, Developing Skills)
- Adaptations are suggested
for different needs
- Chapters describe
basic methods used in the book, with guidance for setting
up activities, sample session plans and term programmes
- Includes creative
materials for use in storytelling
-
-
Brings sex education to life."
-
Lea, Frances
(1991) Release me, Video (25 min.), Bournemouth
School of Media, Poole, Dorset, UK
"Release me is a story about a relationship between Roy and
Janet. They meet each other at a day centre, where they are
involved in rehearsing for a concert. As the relationship develops,
so does the opposition. This simple story of everyday life is
extraordinary because of its cast. Acted by and written about
adults with learning disabilities, this film shows the problems
surrounding their intimate relationships and their struggle
to make decisions for themselves." Leaflet about the film slightly
modified
Recommended
Teaching Resources to Assist Parents of Young People
with Learning Disabilities
(The teaching resources
listed below can also be used by staff working with young people
with learning disabilities in the area of sex education.)
- Kerr-Edwards, Lesley
& Scott, Lorna (2003) Talking together. About
Sex and Relationships, A Practical Resource for Schools and
Parents Working with Young People with Learning Disabilities,
London, fpa direct, Ph: 0044 1865 719418 fpa direct
"The follow-up to Talking together ... about growing up, this
book is aimed at schools, parents and carers working with young
peole with learning disabilities. Suitable for work with people
aged 13+.Price £14.99 + p & p"
- Scott, Lorna & Kerr-Edwards,
Lesley (1999) Talking together. About Growing
Up, A Workbook for Parents of Children with Learning Disabilities,
London, fpa direct, Ph: 0044 1865 719418
"An illustrated workbook for parents of children with learning
difficulties. It contains exercises to help parents introduce
topics such as puberty, body parts, public and private behaviour,
keeping safe and feelings and relationships. £12.99."
- Shepherd School, (1993)
Protecting Your Child, Now They are Growing Up
... Series, , Nottingham, Shepherd School (£ 2 Sterling per
booklet +pp)
A5 booklets for parents (mostly drawings addressing menstruation
and masturbation issues)
- Social Biology Resource
Centre (1990) Janet's Got Her Period, Teaching
pack (Video, Photo-story book & handbook for parents and carers
), Carlton, Australia, available from Boulton-Hawker Films Ltd,
Ipswich, UK, Ph: 0044 1473 822235
The seventeen minute video comes in two versions:
a. the story in total
b. the story repeated and divided into three sections
· information
· demonstration and
· reinforcement.
Photo-Story Book: "In this story, Louise is learning about periods
with her mother and her sister Janet. The emphasis is on self-care
skills and personal responsibility. There is no attempt to explain
the relationship between menstruation and reproduction, as this
information is already widely available. The focus of the information
about periods is on the occurrence of bleeding and how to use
menstrual pads. This is commonly the first step for girls learning
about their menstruation. The presentation of the information
is simple, visually specific and deliberately repeats each message."
The handbook provides practical guidelines for developing an
effective and individualized menstrual management program. By
using the ideas presented you will be able to assist the young
woman to achieve maximum independence in her menstrual self
care.
- Books Beyond
Words - Series
Royal College of Psychiatrists, Book Sales, 17, Belgrave Square,
London, SW1X 8PG,UK, Tel: 0044-20 7235 2351 (ext 146), Fax:
0044-20 7245 1231, booksales@rcpsych.ac.uk www.rcpsych.ac.uk/publications/gaskell
(£10 + pp per book)
"Books Beyond Words, a series of picture books for use by people
with learning disabilities, are produced to make communicating
easier and to enable discussion about difficult topics. Supporting
text is provided at the back of each book, giving an interpretation
of what is happening in the pictures, but the pictures really
speak for themselves. Guidelines and back-up information are
also provided for carers, supporters and professionals."
- Hollins, S. & Downer,
J. (2ooo) Keeping healthy down below, London, St. Georges
Hospital, Royal College of Psychiatrists and Gaskell Press
- Hollins, S & Perez,
W. (2000) Looking after my Breasts, Part of the "Books Beyond
Words Series", London, St. George's Hospital Medical School,
Royal College of Psychiatrists and Gaskell Press
- Hollins, S & Sinason,
V. (1992) Jenny Speaks Out, Part of the "Books Beyond Words
Series", London, St. George's Hospital Medical School and
Royal College of Psychiatrists
- Hollins, S. & Roth,
T. (1995) Making Friends, Part of the "Books Beyond Words
Series", London, St. George's Hospital Medical School and
Royal College of Psychiatrists
- Hollins, S. & Sinason,
V. (1993) Bob Tells All, Part of the "Books Beyond Words
Series", London, St. George's Hospital Medical School and
Royal College of Psychiatrists
- Hollins, S. & Sinason,
V. (2001) Susan's Growing Up, Part of the "Books Beyond
Words Series", London, St. George's Hospital Medical School
and Royal College of Psychiatrists
- Hollins, S. & Terry,
R. (1994) Hug Me, Touch Me, Part of the "Books Beyond Words
Series", London, St. George's Hospital Medical School and
Royal College of Psychiatrists
- Hollins, S & Wilson,
J. (2004) Looking after my Balls, Part of the "Books Beyond
Words Series", London, St. George's Hospital Medical School,
Royal College of Psychiatrists and Gaskell Press
- Hollins, S. et al
(1999) Falling in Love, Part of the "Books Beyond Words
Series", London, St. George's Hospital Medical School and
Royal College of Psychiatrists
- Hollins, Sheila et
al (1996) You're On Trial, Part of the "Books Beyond Words
Series", London, St. George's Hospital Medical School and
Royal College of Psychiatrists
- Hollins, Sheila et
al (1996) Going To The Doctor, Part of the "Books Beyond
Words Series", London, St. George's Hospital Medical School
and Royal College of Psychiatrists
- Hollins, Sheila et
al (1998) I Can Get Through It, Part of the "Books Beyond
Words Series", London, St. George's Hospital Medical School
and Royal College of Psychiatrists
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